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Diabetes

  • Type 1 Diabetes Resources

    July 7, 2017

    I plan to eventually write about a bunch of these topics individually. Until then, here is my collection of links to a number of diabetes-releated topics that I have found especially helpful.

    Blogs to read

    • Melitta is my favorite advocate about adult-onset T1, and always has great information with a strong emphasis on science and research.
      • http://adultt1diabetes.blogspot.com/
    • Gary Scheiner is the author of the amazing Think Like a Pancreas. He also runs a diabetes consulting service and writes a lot of great stuff about dealing with T1.
      • http://integrateddiabetes.com/
    • Dr. Ponder’s Sugar Surfing method of dynamically managing blood sugar levels should be a tool available to everyone who uses insulin. His blog has great info in addition to the book.
      • https://www.sugarsurfing.com/
    • Digital magazine dealing with all kinds of things for both T1 and T2.
      • https://diatribe.org/
    • News about science and technology related to T1.
      • http://insulinnation.com/
    • Has a lot of information about all kinds of diabetes, but focuses mostly on topics relevant to people with T1.
      • https://asweetlife.org/
    • Magazine/blog that focuses on both T1 and T2, but still occasionally has some useful information.
      • https://www.diabetesselfmanagement.com/
    • Joslin is one of the most respected research institutions for T1.
      • http://blog.joslin.org/

    Type 1 Diabetes Diagnosed in Adulthood:

    • Adult-Onset Type 1 Diabetes: Current Understanding and Challenges
    • The management of type 1 diabetes in adults. A consensus report by the American Diabetes Association (ADA) and the European Association for the Study of Diabetes (EASD)
    • https://slate.com/technology/2018/03/type-1-diabetes-diagnoses-can-happen-well-into-adulthood.html
    • http://adultt1diabetes.blogspot.com/2016/11/most-new-onset-type-1-diabetes-occurs.html
    • http://www.diabetesforecast.org/2015/sep-oct/tests-to-determine-diabetes.html
    • http://www.diabetesforecast.org/2015/sep-oct/diagnosing-type-1-in-adults.html
    • http://www.diabetesforecast.org/2010/may/the-other-diabetes-lada-or-type-1-5.html
    • http://www.medscape.com/viewarticle/869028

    Participate in Research:

    • https://www.benaroyaresearch.org/our-research/clinical-research/get-involved
    • http://www.jdrf.org/research/clinical-trials/
    • https://www.findmecure.com/
    • https://www.antidote.me/
    • https://www.clarahealth.com/

    Diagnosing Diabetes:

    • 2022 diagnostic/classification recommendations: https://diabetesjournals.org/care/article/45/Supplement_1/S17/138925/2-Classification-and-Diagnosis-of-Diabetes
    • http://www.diabetesincontrol.com/adajdrf-type-1-diabetes-sourcebook-excerpt-1-diagnosing-diabetes/
    • http://www.diabetesforecast.org/2015/sep-oct/tests-to-determine-diabetes.html
    • Antibodies: https://myglu.org/articles/t1d-and-autoantibodies-here-s-what-you-need-to-know
    • http://care.diabetesjournals.org/content/25/suppl_1/s5
    • http://www.who.int/diabetes/en/ and http://www.who.int/diabetes/publications/Definition%20and%20diagnosis%20of%20diabetes_new.pdf

    Genetics

    • http://www.joslin.org/info/genetics_and_diabetes.html
      • Gone now. See internet archive: https://web.archive.org/web/20190605070010/https://www.joslin.org/info/genetics_and_diabetes.html
    • http://www.diabetes.org/diabetes-basics/genetics-of-diabetes.html
      • https://www.ncbi.nlm.nih.gov/books/NBK1667/
    • https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5034897/
    • http://care.diabetesjournals.org/content/41/9/1887
    • https://insulinnation.com/research/unraveling-the-genetic-components-of-type-1-diabetes/

    Testing your at-risk family members

    • https://trialnet.org/ (US and many other countries around the world)
    • https://type1screen.org/ Australia (and maybe Aotearoa / New Zealand)
    • https://www.jdrf.org/t1d-resources/t1detect/ (anyone can order a test, but it’s not free)

    Causes

    • Has some issues (confused about prevalence in adulthood and definition of LADA) but overall interesting: http://dlife.com/type-1-diabetes-genetic-hereditary-causes-treatment/

    Insulin:

    • http://www.straighthealthcare.com/insulin-chart.html
    • http://www.diabetesnet.com/about-diabetes/insulin/insulin-action-time
    • http://www.webmd.com/diabetes/guide/diabetes-types-insulin
    • Types of insulin (acting times): https://dtc.ucsf.edu/types-of-diabetes/type2/treatment-of-type-2-diabetes/medications-and-therapies/type-2-insulin-rx/types-of-insulin/
    • In the fridge: https://medangel.co/blog/insulin-pens-are-welcome-back-to-the-fridge-49d37511c88c/
    • Temperature:
      • https://beyondtype1.org/thermometers-insulin/
      • https://www.healthline.com/diabetesmine/tracking-insulins-health-in-the-summer-heat
    • Insulin Pooling: https://www.diabeteshealth.com/why-smaller-shots-of-insulin-get-absorbed-faster-peak-sooner-and-are-out-of-your-system-quicker/
      • Read it at the Internet Archive because the above has been broken
    • Walmart Insulin: http://www.bootcampforbetics.org/blog/when-you-cant-afford-the-insulin-you-need-in-order-to-survive
      • https://www.diabetesdaily.com/blog/you-can-get-cheap-insulin-at-walmart-without-an-rx-in-some-states-576008/

    Amylin (another thing people with T1DM don’t make):

    • https://insulinnation.com/treatment/amylin-the-other-hormone-affected-by-type-1-diabetes/
    • https://www.diabetesselfmanagement.com/managing-diabetes/treatment-approaches/amylin/
    • http://integrateddiabetes.com/which-tide-to-ride/

    Carbs

    • https://insulinnation.com/living/dietary-fiber-why-it-does-doesnt-affect-your-blood-sugar/
    • https://www.diabetesselfmanagement.com/nutrition-exercise/meal-planning/counting-carbohydrates-like-a-pro/
    • https://www.diabetesselfmanagement.com/blog/how-do-you-do-fiber/
    • https://dtc.ucsf.edu/types-of-diabetes/type1/treatment-of-type-1-diabetes/medications-and-therapies/type-1-insulin-therapy/calculating-insulin-dose/
    • http://www.sugar-and-sweetener-guide.com/glycemic-index-for-sweeteners.html

    DKA: Diabetic Ketoacidosis

    • https://www.sugarsurfing.com/single-post/2018/05/06/Diabetic-Ketoacidosis-myths-tips-and-lesser-known-facts
    • https://beyondtype1.org/facts-about-dka-an-interview-with-emergency-medicine-specialist/

    Stages:

    • https://www.trialnet.org/t1d-facts/stages-t1d
      • TrialNet update: http://conta.cc/2yq40nm
    • http://blog.joslin.org/2016/01/identifying-stages-of-type-1-diabetes-could-help-with-intervention/
    • http://care.diabetesjournals.org/content/38/10/1964.full
      • copy here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5321245/

    Testing your blood sugar

    • http://www.diabetes-book.com/measure-blood-sugar/ (Scroll down to #4 under “Important Techniques”)
    • https://diatribe.org/are-blood-glucose-meters-accurate-new-data-18-meters
    • Tylenol: http://insulinnation.com/treatment/acetaminophen-can-affect-meter-cgm-readings/

    Disability? Diabetes is a protected class under the law:

    • https://community.beyondtype1.org/posts/1188054
    • https://www.eeoc.gov/laws/types/diabetes.cfm
    • https://www.diabetes.org/resources/know-your-rights
      • https://www.diabetes.org/resources/know-your-rights/discrimination/employment-discrimination
      • Older links are broken be out of date because of a website redesign but available at the Internet Archive.
      • http://www.diabetes.org/living-with-diabetes/know-your-rights/discrimination/is-diabetes-a-disability.html
        • Read it at the Internet Archive because the above is gone
      • http://www.diabetes.org/living-with-diabetes/know-your-rights/for-lawyers/employment-materials/proving-diabetes-is-a-disability.html
        • Read it at the Internet Archive because the above has been broken
    • http://insulinnation.com/research/diabetes-as-a-disability-in-the-workplace/

    Buying Insulin in Canada or Mexico

    • https://myglu.org/articles/buying-insulin-from-abroad-is-it-legal-and-is-it-safe
    • https://www.fda.gov/consumers/consumer-updates/5-tips-traveling-us-medications
      • The above duplicates the answer here: https://www.fda.gov/about-fda/fda-basics/it-legal-me-personally-import-drugs

    Treating low blood sugar

    • http://www.joslin.org/info/how_to_treat_a_low_blood_glucose.html

    Test strip subscription plans:

    Prices may have changed since this list was created

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