Type 1 Diabetes Resources

I plan to eventually write about a bunch of these topics individually. Until then, here is my collection of links to a number of diabetes-releated topics that I have found especially helpful.

Blogs to read

• Melitta is my favorite advocate about adult-onset T1, and always has great information with a strong emphasis on science and research.
  • http://adultt1diabetes.blogspot.com/
• Gary Scheiner is the author of the amazing Think Like a Pancreas. He also runs a diabetes consulting service and writes a lot of great stuff about dealing with T1.
  • http://integrateddiabetes.com/
• Dr. Ponder’s Sugar Surfing method of dynamically managing blood sugar levels should be a tool available to everyone who uses insulin. His blog has great info in addition to the book.
  • https://www.sugarsurfing.com/
• Digital magazine dealing with all kinds of things for both T1 and T2.
  • https://diatribe.org/
• News about science and technology related to T1.
  • http://insulinnation.com/
• Has a lot of information about all kinds of diabetes, but focuses mostly on topics relevant to people with T1.
  • https://asweetlife.org/
• Magazine/blog that focuses on both T1 and T2, but still occasionally has some useful information.
  • https://www.diabetesselfmanagement.com/
• Joslin is one of the most respected research institutions for T1.
  • http://blog.joslin.org/

Type 1 Diabetes Diagnosed in Adulthood:

• Adult-Onset Type 1 Diabetes: Current Understanding and Challenges
• The management of type 1 diabetes in adults. A consensus report by the American Diabetes Association (ADA) and the European Association for the Study of Diabetes (EASD)
• https://slate.com/technology/2018/03/type-1-diabetes-diagnoses-can-happen-well-into-adulthood.html
• http://adultt1diabetes.blogspot.com/2016/11/most-new-onset-type-1-diabetes-occurs.html
• http://www.diabetesforecast.org/2015/sep-oct/tests-to-determine-diabetes.html
• http://www.diabetesforecast.org/2015/sep-oct/diagnosing-type-1-in-adults.html
• http://www.diabetesforecast.org/2010/may/the-other-diabetes-lada-or-type-1-5.html
• http://www.medscape.com/viewarticle/869028

Participate in Research:

• https://www.benaroyaresearch.org/our-research/clinical-research/get-involved
• http://www.jdrf.org/research/clinical-trials/
• https://www.findmecure.com/
• https://www.antidote.me/
• https://www.clarahealth.com/

Diagnosing Diabetes:

• 2022 diagnostic/classification recommendations: https://diabetesjournals.org/care/article/45/Supplement_1/S17/138925/2-Classification-and-Diagnosis-of-Diabetes
• http://www.diabetesincontrol.com/adajdrf-type-1-diabetes-sourcebook-excerpt-1-diagnosing-diabetes/
• http://www.diabetesforecast.org/2015/sep-oct/tests-to-determine-diabetes.html
• Antibodies: https://myglu.org/articles/t1d-and-autoantibodies-here-s-what-you-need-to-know
• http://care.diabetesjournals.org/content/25/suppl_1/s5
• http://www.who.int/diabetes/en/ and http://www.who.int/diabetes/publications/Definition%20and%20diagnosis%20of%20diabetes_new.pdf

Genetics

• http://www.joslin.org/info/genetics_and_diabetes.html
  • Gone now. See internet archive: https://web.archive.org/web/20190605070010/https://www.joslin.org/info/genetics_and_diabetes.html
• http://www.diabetes.org/diabetes-basics/genetics-of-diabetes.html
  • https://www.ncbi.nlm.nih.gov/books/NBK1667/
• https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5034897/
• http://care.diabetesjournals.org/content/41/9/1887
• https://insulinnation.com/research/unraveling-the-genetic-components-of-type-1-diabetes/

Testing your at-risk family members

• https://trialnet.org/ (US and many other countries around the world)
• https://type1screen.org/ Australia (and maybe Aotearoa / New Zealand)
• https://www.jdrf.org/t1d-resources/t1detect/ (anyone can order a test, but it’s not free)

Causes

• Has some issues (confused about prevalence in adulthood and definition of LADA) but overall interesting: http://dlife.com/type-1-diabetes-genetic-hereditary-causes-treatment/

Insulin:

• http://www.straighthealthcare.com/insulin-chart.html
• http://www.diabetesnet.com/about-diabetes/insulin/insulin-action-time
• http://www.webmd.com/diabetes/guide/diabetes-types-insulin
• Types of insulin (acting times): https://dtc.ucsf.edu/types-of-diabetes/type2/treatment-of-type-2-diabetes/medications-and-therapies/type-2-insulin-rx/types-of-insulin/
• In the fridge: https://medangel.co/blog/insulin-pens-are-welcome-back-to-the-fridge-49d37511c88c/
• Temperature:
  • https://beyondtype1.org/thermometers-insulin/
  • https://www.healthline.com/diabetesmine/tracking-insulins-health-in-the-summer-heat
• Insulin Pooling: https://www.diabeteshealth.com/why-smaller-shots-of-insulin-get-absorbed-faster-peak-sooner-and-are-out-of-your-system-quicker/
  • Read it at the Internet Archive because the above has been broken
• Walmart Insulin: http://www.bootcampforbetics.org/blog/when-you-cant-afford-the-insulin-you-need-in-order-to-survive
  • https://www.diabetesdaily.com/blog/you-can-get-cheap-insulin-at-walmart-without-an-rx-in-some-states-576008/

Amylin (another thing people with T1DM don’t make):

• https://insulinnation.com/treatment/amylin-the-other-hormone-affected-by-type-1-diabetes/
• https://www.diabetesselfmanagement.com/managing-diabetes/treatment-approaches/amylin/
• http://integrateddiabetes.com/which-tide-to-ride/

Carbs

• https://insulinnation.com/living/dietary-fiber-why-it-does-doesnt-affect-your-blood-sugar/
• https://www.diabetesselfmanagement.com/nutrition-exercise/meal-planning/counting-carbohydrates-like-a-pro/
• https://www.diabetesselfmanagement.com/blog/how-do-you-do-fiber/
• https://dtc.ucsf.edu/types-of-diabetes/type1/treatment-of-type-1-diabetes/medications-and-therapies/type-1-insulin-therapy/calculating-insulin-dose/
• http://www.sugar-and-sweetener-guide.com/glycemic-index-for-sweeteners.html

DKA: Diabetic Ketoacidosis

• https://www.sugarsurfing.com/single-post/2018/05/06/Diabetic-Ketoacidosis-myths-tips-and-lesser-known-facts
• https://beyondtype1.org/facts-about-dka-an-interview-with-emergency-medicine-specialist/

Stages:

• https://www.trialnet.org/t1d-facts/stages-t1d
  • TrialNet update: http://conta.cc/2yq40nm
• http://blog.joslin.org/2016/01/identifying-stages-of-type-1-diabetes-could-help-with-intervention/
• http://care.diabetesjournals.org/content/38/10/1964.full
  • copy here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5321245/

Testing your blood sugar

• http://www.diabetes-book.com/measure-blood-sugar/ (Scroll down to #4 under “Important Techniques”)
• https://diatribe.org/are-blood-glucose-meters-accurate-new-data-18-meters
• Tylenol: http://insulinnation.com/treatment/acetaminophen-can-affect-meter-cgm-readings/

Disability? Diabetes is a protected class under the law:

• https://community.beyondtype1.org/posts/1188054
• https://www.eeoc.gov/laws/types/diabetes.cfm
• https://www.diabetes.org/resources/know-your-rights
  • https://www.diabetes.org/resources/know-your-rights/discrimination/employment-discrimination
  • Older links are broken be out of date because of a website redesign but available at the Internet Archive.
  • http://www.diabetes.org/living-with-diabetes/know-your-rights/discrimination/is-diabetes-a-disability.html
    • Read it at the Internet Archive because the above is gone
  • http://www.diabetes.org/living-with-diabetes/know-your-rights/for-lawyers/employment-materials/proving-diabetes-is-a-disability.html
    • Read it at the Internet Archive because the above has been broken
• http://insulinnation.com/research/diabetes-as-a-disability-in-the-workplace/

Buying Insulin in Canada or Mexico

• https://myglu.org/articles/buying-insulin-from-abroad-is-it-legal-and-is-it-safe
• https://www.fda.gov/consumers/consumer-updates/5-tips-traveling-us-medications
  • The above duplicates the answer here: https://www.fda.gov/about-fda/fda-basics/it-legal-me-personally-import-drugs

Treating low blood sugar

• http://www.joslin.org/info/how_to_treat_a_low_blood_glucose.html

Test strip subscription plans:

Prices may have changed since this list was created

• Overview: https://diatribe.org/how-get-unlimited-test-strips-and-personal-diabetes-coaching
• https://start.onedrop.today/products/test-strips-plans - unlimited: $34/month paid annually
• https://diatribe.org/new-livongo-unlimited-test-strips-and-coaching - unlimited: $65/month
• https://mysugr.com/us/bundle/ - unlimited: $40/month
• https://shop.mydario.com/ - 200 strips for $50/month
• https://diathrive.com/ - varied, up to 200 strips for $30/month

Travel, Flying, TSA

• https://beyondtype1.org/type-1-tsa-know-taking-off/
• https://www.dexcom.com/dexcom-airport-and-travel-guide-flying-dexcom-cgm
• https://www.tsa.gov/blog/2020/11/13/travel-tip-traveling-diabetes
  • https://www.tsa.gov/travel/special-procedures
  • https://www.tsa.gov/travel/security-screening/whatcanibring/items/insulin
  • https://www.tsa.gov/travel/security-screening/whatcanibring/items/insulin-pumps-and-glucose-monitors
• Insulin pumps affected by altitude: http://care.diabetesjournals.org/content/34/9/1932

Drinking Alcohol

• Great talk from TCOYD about Alcohol and Diabetes: https://www.youtube.com/watch?v=GRvjBrFvnSk
• https://mysugr.com/diabetes-and-alcohol/
• https://dtc.ucsf.edu/living-with-diabetes/diet-and-nutrition/diabetes-alcohol/
  • Details: https://diabetes.ucsf.edu/sites/diabetes.ucsf.edu/files/PEDS%20Alcohol%20and%20Diabetes.pdf
• https://www.thediabetescouncil.com/effects-of-alcohol-on-diabetes/
• https://pubs.niaaa.nih.gov/publications/arh22-3/211.pdf

Driver’s License

• https://www.diabetes.org/resources/know-your-rights/drivers-licenses-laws

The Name “Diabetes”

• http://www.healthline.com/diabetesmine/the-kerfuffle-over-new-names-for-type-1-and-type-2-diabetes
• https://www.diapedia.org/type-1-diabetes-mellitus/2104085134/historical-aspects-of-type-1-diabetes

Medical ID On Your Phone

• iOS: https://support.apple.com/en-us/HT207021
• Android: https://support.google.com/android/answer/9319337?hl=en
• Both: http://ktla.com/2017/03/10/how-to-put-emergency-contact-info-on-your-phones-lock-screen/
• Android (older): https://www.pcmag.com/article2/0,2817,2489237,00.asp

Donating Blood

• https://beyondtype1.org/donating-blood-with-type-1-diabetes/

History

• discovery of diabetes: http://diabetes.diabetesjournals.org/content/50/2/217

Cures and Conspiracy Theories

• https://www.healthline.com/diabetesmine/is-there-a-conspiracy-preventing-a-diabetes-cure
• https://seekingalpha.com/article/276798-is-big-pharma-really-trying-to-cure-diabetes-were-seeking-profits-and-debunking-myths